Hello everyone! I’ve mentioned a couple of times on my blog that I have borderline personality disorder. It is a mental illness that happens to be very stigmatized. But what is borderline personality disorder, and why is there so much stigma surrounding the condition? I explain this in my new guest post! Click the link below to read it and don’t forget to leave a like and comment with your thoughts!
My last post was a guest post by fellow blogger Antoinette [aka Tonie] Tardive Bryant from Learn and Laugh with Tonie. She is a former teacher and is dedicated to the education of young children. She is working on selling some children’s books and toys with a company called Paper Pie. There is a nice selection of books and toys for children of various ages. If you have children and you are interested in purchasing a book or toy, click this link: https://b8486.paperpie.com/shop. And please comment below if you purchase anything!
Our family understood what supporting a kid with a disability feels like because I came into the world that way and it wasn’t easy.
Born breach the doctor thought it was my bottom, but it was my shoulders and he crushed them with the forceps.
Support Children with Disabilities and Tips for Parents and Teachers
I not only was in the hospital for over 3 months, but my parents took me to PT 4 days a week till I was 7 when they transplanted muscle out of my shoulder to my lower arm.
So I understand, but some kids don’t understand and can just be curious. Heck I’ve had adults ask me what’s wrong with my arm, therefore in the hospital for over 3 months, but my parents took me to PT 4 days a week till I was 7 when they transplanted muscle out of my shoulder to my lower arm.
Interested in reading so My mom bought me a book 📖 called, “ LITTLE WOMEN .” I was hooked. To this day, over 65 years later it’s still my favorite book. As an adult I now collect any edition of “ Little Women” and my library has grown.
In this blog post, we will explore some practical tips and helpful resources that parents and teachers can use but before that I wonder if you know how many disabilities kids deal with!
Cerebral palsy ,Learning disability, Attention deficit hyperactivity disorder, Autism spectrum disorder, Hearing loss< Deafblindness< Down syndrome, Spina bifida, and so many more.
Have you ever heard of Angelman Syndrome ?
Angelman Syndrome is a disorder that is caused by the loss of function of a specific gene. This gene is located on the chromosome 15, and it is responsible for providing instructions for making a protein called UBE3A. This protein is essential for normal brain development.
Angelman Syndrome results in characteristic features, such as severe intellectual disability, developmental delays, speech impairment, and problems with movement and balance.
In addition to these physical symptoms, people with Angelman Syndrome often have a happy demeanor and frequently laugh and smile. They may also be attracted to water and have a fascination with lights and movement.
While there is no cure for Angelman Syndrome, early intervention and support can help improve the quality of life for affected individuals and their families.
I have a friend whose second child has Angelman Syndrome. They have the most loving family, 3 beautiful children, Colti is their middle child who has this syndrome. They are amazing!
Below are several excerpts from her posts on Facebook.
With her permission I’d like to share with you.
“ In our house we read books about Chromosomes. We talk about our bodies & our brains, how they came to be, how different everyone is, & all of the reasons that those differences are wonderful.
Realistically, we have children’s books about chromosomes because we have a child/sibling that is missing a piece of one of them.
Having a son/brother with Angelman Syndrome has opened our eyes to the big world of children with special needs & just how common it actually is! There is a whoooole lotta “Rare” out there!
Wanting her children to know that different is not scary they bought a book about chromosomes.It’s not weird, or stupid, or messed up, or crazy.
Our brains simply work differently. These are our genes & as long as everyone’s doing the best they can, it is good enough & they are valuable.”
Colti is the cutest little boy and smiles all the time!
This dynamic and joyous exploration of difference helps young children learn to respond in a kind and equal way to everyone ,
regardless of shape, size, age, physical and mental ability, gender, race, beliefs, language, culture, national identity, background, and so on.
With topics ranging from clothes, hair, music, and food to homes, festivals, and families, there is plenty for children to talk about as they find out about diversity and see how differences relate to them.
Having a different brain is as normal as having a different face. We’re all made a little different & a little the same.
This is a really cute book:
Sid spends most of his time at home. He is upside down, so it’s easier that way. Until, one day, a basketball lands in his breakfast and changes everything.
A book about accepting our differences and the positive ripple effect of including others.
Education is the key to inclusion for all that are considered rare! Whether your born rare or became rare.
So, please! Educate your babies, so babies like mine don’t need to battle anything more than what the universe has handed them.
Another condition is having Bicuspid aortic valve (BAV) is a congenital heart defect that affects the aortic valve, which is responsible for regulating blood flow from the heart to the rest of the body.
BAV occurs when the aortic valve only has two cusps instead of the normal three, which can cause blood to leak backward into the heart.
While some people with BAV live without any symptoms, others may experience a range of heart problems that require careful monitoring and treatment. If you’re a parent or teacher of a child with BAV, here’s what you need to know.
Bicuspid aortic valve is a serious heart condition that requires careful monitoring and management, but with the right treatment and lifestyle choices, many children with BAV can live healthy, fulfilling lives.
As a parent or teacher, it’s important to be informed about the causes, symptoms, diagnosis, and treatment options for BAV,
and to provide support and encouragement to children with this condition as they navigate the challenges of growing up with a heart condition.
With the right care and support, children with BAV can thrive and reach their full potential.
His parents do a yearly fundraiser called
TEAM SUPER COOPER
“ Cooper McGee was born on 2/12/21, he was diagnosed at 6 weeks old with a CHD. After a murmur was heard in the doctors office we went and had an echo at Chop Cardiology.
It was then that Cooper was diagnosed with a bicuspid aortic valve with a moderate stenosis. Cooper is seen by cardiology every 4 months since birth, his stenosis numbers have stayed the same, therefore requiring no cardiac intervention at this point.
He will eventually need undergo a cardiac cath and open heart surgery (we hope that is far down the road). “
“ Our Super Cooper is full of energy and lives everyday to the fullest. You can always count on Cooper to make you smile or give you a hug.
This event is important for us as we walk for Cooper, our heart warrior, in hopes that the funds raised will help in future research to make sure he and all other CHD warriors, gets the best care an outcomes in their care.
“ We participate in the Congenital Heart Walk to support the mission of The Children’s Heart Foundation: to advance the diagnosis, treatment, and prevention of congenital heart defects by funding the most promising research.
As you can see his brother adores little Cooper!”
As you can see this isn’t a physical disability because you don’t look at Cooper and know he has disability!
Just look at the way big brother Jack’s looking at Cooper !!!
Education Awareness
The first step in supporting children with disabilities is to educate yourself on the specific disability that the child is facing.
There are many types of disabilities, each with unique challenges and strengths. Understanding the specific diagnosis can help you better understand how to approach and support the child and their family.
Resources like the National Center for Learning Disabilities and the National Institute of Mental Health have comprehensive information on different types of disabilities. https://www.ncld.org/
Create an Inclusive Environment:
One of the most important things that parents and educators can do is to create an inclusive environment that welcomes children with disabilities.
This includes providing physical accommodations like wheelchair ramps and Braille signage, as well as social accommodations like allowing extra time for assignments or providing a quiet space for children who are easily overwhelmed.
Inclusive classrooms and social situations help children with disabilities feel accepted and valued, which can help them thrive both academically and socially.
And most classrooms have an abundance of books to read to kids and some will let parents borrow them.
Promote Self-Advocacy:
Children with disabilities can benefit from learning how to self-advocate for their own needs and accommodations.
Parents and educators can empower children with disabilities by teaching them to ask for help when they need it, to articulate their needs and preferences, and to advocate for themselves in social situations.
Self-advocacy helps children with disabilities build confidence and become more independent.
Offer Emotional Support:
Children with disabilities may face additional emotional and social challenges that can be difficult to manage.
Parents and educators can offer emotional support by actively listening to the child, providing emotional validation, and connecting the child with resources like supportive counseling or peer support groups.
Emotional support can help children with disabilities cope with the unique challenges they face and develop resilience.
Partner with Parents and Caregivers:
Parents and caregivers are essential partners in supporting children with disabilities.
Regular communication and collaboration between parents, caregivers, and educators can help ensure that the child’s needs are being met and that everyone is working towards the same goals.
Working together can also build trust and strengthen relationships between parents and educators, enhancing the child’s experience and outcomes.
Supporting children with disabilities is an ongoing process that requires ongoing effort, communication, and collaboration.
By educating ourselves, creating inclusive environments, promoting self-advocacy, offering emotional support, and partnering with parents and caregivers, we can make a significant difference in the lives of children with disabilities.
With patience, compassion, and persistence, we can help children with disabilities thrive and reach their full potential.
Buy those books above to start educating your child to various disabilities!
Also check out the above post on why it’s so important to read to your kids!
Buy those books above to start educating your child to various disabilities!
About the Author
My name’s Antoinette [aka Tonie] Tardive Bryant. I’ve been married 43 years and still so in love, 3 adult kids, 2 gorgeous “ daughter in loves” as I refer to them, 2 adorable grandchildren, and my dog, Mokie.
In 2020 I joined PaperPie because I think that reading is important for children to grow and develop. Originally to make some xtra money and get my grandchildren free books, and it took off.As part of PaperPie we do book drives and fundraisers. I am trying to do my part and give back to the community and charities.
Hello everyone! Last time, I posted a guest post by fellow blogger Rae from Second Chances. I met Rae on Facebook and I loved her inspirational content! I just had to get in touch! She talks about mental illness on her blog like I do, and I was so happy when she agreed to let me share her powerful story on my blog! What an honor! And now she’s sharing my story with mental illness on her blog! To read my story click over to Rae’s blog here. Be sure to also checkout other posts on her blog. There you will find powerful stories on dealing with addiction and domestic violence. Rae shares these stories to encourage those dealing with these issues to seek help.
TRIGGER WARNING: This Post Contains content that might be hard for some to read. Please take caution and take care of yourselves.
This is a Guest post by fellow blogger Rae over at Rea’s Second Chances . I recently met her through Facebook, and was really moved and inspired by her posts. Rae’s focus on her blog and social media is encouraging people to get help with mental illness. I talk a lot about mental health on my blog, so I thought Rae and I should share our stories with mental illness on each other’s blogs. Read her powerful piece below:
I’ve been dealing with ptsd ever since I was about 7 or 8 years old. Right around the time my mom tried to kill herself I believe it started. But it wasn’t until I was older and she fell and broke her leg that I realized I was utterly afraid of losing her. I worried about it constantly, mostly out of nowhere. I’d be scared I’d come from school and she would be dead. It was very unhealthy and yet I kept it to myself for years. I will never forget the pounding sounds my heart made, how sweaty my hands would feel and the urge to vomit as we opened the door after school. It wasn’t just then,it was when she was at work or honestly anytime we were separated. Now looking back it consumed me a lot more than it should have.
What is PTSD?
Post-traumatic stress disorder (PTSD) is a disorder that develops in some people who have experienced a traumatic , scary, or dangerous situation. The body and even the brain can change when exposed to any kind of trauma, such as combat, accidents, domestic violence,sexually assault, and even global pandemics. Often we experience something so terrifying or stressful that our brains can’t make sense of what has happened to us. Due to us not being able to move through the second stage of processing, our brain return us to the exact same emotional and physical state as when the traumatic event occurred, especially when we are triggered.
My fears of losing my momma eventually came true in 2008 and that day forever lives in my head. For years I denied that I was still living through that day. I Denied that I could possibly have ptsd and be harming myself more by denying it was happening. I would cry and literally feel like I was drowning in grief over her. I’d cry so hard I’d hyperventilate which then caused a panic attack. The anger,denial and reliving the days leading up were complete torture. The thought of being labeled with a mental illness was frightening. So I did what most people do and I kept it to myself.
There is such a stigma on mental health issues that people don’t feel comfortable coming forward. But you have to be able to notice the symptoms and notice when it’s time to seek help. Symptoms might include feeling numb, experiencing nightmares or flashbacks, and being particularly sensitive to loud noises to name a few. Sudden outburst of Anger,sadness and hopeless are also symptoms. Living in sadness and trauma is never the answer to healing. There are options and you have to find what works best for you. Everyone isn’t the same so rather it’s talking to someone, journaling or taking medication just make sure your doing what will help heal your soul.
About Rae: Rea is a mental health blogger whose focus is on sharing her experiences with addiction and domestic violence. She uses her platform to inspire those with addiction and other mental illnesses on their journey to wellness.. Click here to visit her blog.
Call 988, The National Suicide Prevention Hotline in the United States, if you ever have thoughts of harming yourself or if you know someone who does. Please check for the number of the Crisis Prevention hotline in your country if you don’t live in the United States
Hello everyone! Welcome back to my blog. This post will be a bit different, as i’m reviewing a book. The book is called “Yetunde: An Ode to My Mother”, and the author is an African writer named Segilola Salami. The description of the book is below:
Description:
Follow Yetunde as she narrates her mother’s ode to her grandmother. It is the Yoruba praise poetry for a mother known as Oriki Iya. Yetunde is also thrilled and delighted by the ancient Yoruba tale passed down to her by her mother about Labakẹ, a young maiden who was kidnapped to be forced to marry a warrior king. Will Iya Labakẹ save her child in time? Is Iya Labakẹ just a simple defenceless mother? Or . . . ?
This is a short story dedicated to past, present and future mothers, a perfect Mother’s day present!
The book is mostly in English and all Yoruba words are translated, so everyone can enjoy the book fully.
Review:
As mentioned in the description, “Yetunde: An Ode to My Mother” is a book about an African mother of Yuroba heritage spending time with her daughter, and even telling her daughter a traditional Yuroba story. “Yetunde: An Ode to My Mother” is told through the eyes of the small baby daughter, who is relaying to the readers what she has learned from her mother. I’ve mentioned on my blog many times that I have a genetic disorder. I wasn’t diagnosed with the disorder until I was a teenager, but I always knew something was off. I was always small for my age. Due to my size, I was often bullied. The bullying made me feel low and unattractive, but when I would think those thoughts, I would always think of my mother’s words to me: “I have no ugly children”. Segilola’s book reminded me of own my mother and her words to me, and how much strength I get from them. “Yetunde: An Ode to My Mother” beautifully shows how we are shaped by the words of our parents, as the daughter takes in every word her mother, Yetunde, says. Over all, I really enjoyed “Yetunde: An Ode to My Mother”. I believe it is a beautiful way to learn about Yuroba culture. I highly recommend the book
I was born to Christian parents. As an adult, I’m still a Christian. Many people choose to stay in the religion they were born into for several reasons. My reason for remaining a Christian is the emphasis on “love” in Christianity. One of my favorite passages from the Bible states:
1 Corinthians 13:4-8
4 Love is patient, love is kind. It does not envy, it does not boast, it is not proud.
5 It does not dishonor others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs.
6 Love does not delight in evil but rejoices with the truth.
7 It always protects, always trusts, always hopes, always perseveres.
8 Love never fails. But where there are prophecies, they will cease; where there are tongues, they will be stilled; where there is knowledge, it will pass away.
This passage is a good example of what it means to be a Christian, and I try to live my life by it everyday.
Another passage from the Bible that puts an. Emphasis on love is “So now faith, hope, and love abide, these three; but the greatest of these is love,”(1 Corinthians 13:13). This passage focuses on the power of love and is the reason for the many Christian founded organizations and hospitals like The Red Cross and the Salvation Army. The Catholic Church alone runs around 18,000 clinics, 16,000 homes for the elderly and those with special needs, and over 5,000 hospitals. Love is what drives people to helps others. Without love, there would be no faith in the goodness of humanity and there would be no hope for people suffering.
Love is powerful, and Christianity proves this to me everyday.
I recently watched a video by a popular YouTuber named Lauren who runs the channel Living well with Schizophrenia. On her channel, she talks about her experience living with Schizophrenia and Schizoaffective Disorder. In on particular video, Lauren talks about the cost of health care. She lives in Canada where the government is heavily involved in helping with healthcare, so she doesn’t pay a heavy amount for her medical care. However, she shared what she would be paying without help. I liked the idea, and thought I’d also give a little idea of how much my healthcare would cost me without help. You can see this video below:
As I’ve mentioned many times on my blog, I have medical condition called Turner Syndrome. I take several medications for the condition. I did a little digging, and without help, I could be spending a total of $83.00 a month for my medication.
Turner syndrome causes a lot of complications. The condition is when a woman is born with only one fully functioning X chromosome instead of the usual two. Due to this fact, the woman’s body can not create estrogen on its own. Estrogen helps to strengthen a woman’s bones. This is why some older women with low estrogen suffer from osteoporosis. Osteoporosis is a common problem in Turner syndrome patients. Other complications include heart, kidney, and thyroid problems, among others. Because of all of the complications, many procedures are regularly done in order to ensure the Turner Syndrome patient remains in good health. These priced urges can include an MRI, sonogram, blood tests, and a bone density scan, among others. All together, my procedures can cost around $1,500 every time they’re done.
I have also been pretty open on my blog about my struggles with mental illness. It is no secret that mental health services can be expensive. In my case, therapy sessions without help would cost me around $2,800 each week. That’s around 14,000 a month for therapy sessions! The medication I take for my mental illness can cost around $233.00 a month.
As you can see, healthcare is pretty expensive. I didn’t even include all of my doctor visits, including the my primary care provider and specialist visits. I also did not include transportation cost. I would definitely not be able to afford the medical care I get with the good insurance I have.
In spite of everything I still believe that people are really good at heart
Anne Frank
Picture taken from Pixabay
Recently, a family member told me about a woman who wrote a book on grief for her children after their father died. It was later discovered that she herself killed him. I also read in the news about a man who killed his wife after claiming to love her during his time as a contestant on the Family Feud game show.
It seems there is nothing but bad news, and nothing but hatred in people’s hearts. Sometimes, with all the horrendous things going on, I can’t help but think the worst of humanity. But then I remember the quote above from Anne Frank. She wrote those words even though war was raging around her, even though her people were being rounded up and senselessly murdered.
I also think about the kind people who have helped me throughout my life. As a person with special needs, there have been a lot of people. I think about organizations like the Red Cross and the Salvation Army that have workers and volunteers who go all over the world spending their time helping others.
With this being said, I still believe that there are good people out there, even if sometimes they might seem very rare.
What is Turner Syndrome? In this guest post, fellow blogger Seguilola Salami helps me share a little about what Turner Syndrome is and my experience with it in order to spread a little awareness. Thankyou Seguilola! You can read the guest post here. While there, be sure to also checkout other posts on Seguilola’s blog! If you are into books and love to read, her blog is for you! If you have small children and you are looking for books for them, checkout Seguilola’s blog! She has a lot of recommendations, and you’ll enjoy listening to her adorable daughter give reviews on children’s books and interview authors! Click here to checkout her blog! Enjoy!
Life with Charli 